Thursday, August 4, 2011

It was five days after Aseman birth that I found she has DS and it was the worth day of all of my life. I never think about it and I had no knowledge. I thought this is the end of my life, the end of my happiness and the end of my dreams. I just saw some DS people in the street and never had conversation with them. I always think this is a familiar issue and I have no problem!!!! Anyway, the first days were really bad, I search and search and nothing was found but list of uncountable disease and problems come along with Down syndrome. I had no hope and it was just crying and praying for her dying before she torture.
Three weeks passed like this and then we got the result of her Cariotype test and we found she has translocation but very rare type. In fact she has 21:21 and it means she has not have 47 chromosomes (in tiresomy 21 people have 47 chromosomes instead of 46)  but arm’s of one of  her 21th chromosome broke and stick to other one and this made all abnormalities. And it was the first step for changing my mind, do you know why? Because for finding some information about 21;21 I found this blog and it was the first step to see people and kids whit DS but by a routine and good life. From Christina blog I visited other groups and blogs and it opened a new door on me and my little angel.  I wish it is a good start for new life with new condition. Now I am really dependent to cyber space!

Saturday, July 16, 2011

I had decided

I had decided to write for her. For my little 2 months girl, Aseman, who is a sweet, adorable and so much lovely girl by lots of beautiful smile and also by an abnormality she has in her chromosomes. My little angle has Down syndrome, she is translocation 21;21 and it made her lots of difficulties such as heart problem. She has Complete AVSD and should be go on the surgery in October. But it’s not all.  
I had decided to write for her because she should know our feeling; she should know that we look her as a serendipitous. But it’s not all.  
I had decided to write for her and I did  it in Farsi (my native language) but after all I think to do it in English because I want Aseman be a member of DS cyberspace society which is very supportive and  friendly . In fact during the agonizing days we passed, the inspiring and honest and appreciable mom’s blog of DS children encourage me and my husband to insist and be brave, so, in spite of my little knowledge in English, I start it and I wish my virtual friend help me to insist and do my best.
I want to write about my girl and also about condition of these angles in Iran (which is very poor) and last but not least, I also what to write about steps we take to make a charity for these people in Iran. Help me to continue. And it’s not all…

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